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Neurology

影响因子：11.8 DOI：10.1212/WNL.0000000000009406

作者： Hwang DY,Knies AK,Mampre D,Kolenikov S,Schalk M,Hammer H,White DB,Holloway RG,Sheth KN,Fraenkel L 发表时间：2020-09-10 12:17:58

from：《NEUROLOGY》

keywords： Hwang DYKnies AKMampre DKolenikov SSchalk MHammer HWhite DBHolloway RGSheth KNFraenkel L

关键词：

Abstract

OBJECTIVE:To determine whether groups of surrogates for patients with severe acute brain injury (SABI) with poor prognosis can be identified based on their prioritization of goals-of-care (GOC) decisional concerns, an online survey of 1,588 adults recruited via a probability-based panel representative of the US population was conducted. METHODS:Participants acted as a surrogate for a GOC decision for a hypothetical patient with SABI and were randomized to 1 of 2 prognostic scenarios: the patient likely being left with a range of severe functional disability (SD) or remaining in a vegetative state (VS). Participants prioritized a list of 12 decisional concerns via best-worst scaling. Latent class analysis (LCA) was used to discover decisional groups. RESULTS:The completion rate was 44.6%; data weighting was conducted to mitigate nonresponse bias. For 792 SD respondents, LCA revealed 4 groups. All groups shared concerns regarding respecting patient wishes and minimizing suffering. The 4 groups were otherwise distinguished by unique concerns that their members highlighted: an older adult remaining severely disabled (34.4%), family consensus (26.4%), doubt regarding prognostic accuracy (20.7%), and cost of long-term care (18.6%). For the 796 VS respondents, LCA revealed 5 groups. Four of the 5 groups had similar concern profiles to the 4 SD groups. The largest (29.0%) expressed the most prognostic doubt. An additional group (15.8%) prioritized religious concerns. CONCLUSIONS:Although surrogate decision makers for patients with SABI are concerned with respecting patient wishes and minimizing suffering, certain groups highly prioritize other specific decisional factors. These data can help inform future interventions for supporting decision makers.

摘要

期刊介绍

《NEUROLOGY》 (点击进入期刊详情)

英文简介 : As the leading clinical neurology journal worldwide, Neurology is directed to physicians concerned with diseases and conditions of the nervous system. The journal''s purpose is to advance the field by presenting new basic and clinical research with emphasis on knowledge that will influence the way neurology is practiced. The journal is at the forefront in disseminating cutting-edge, peer-reviewed information to the neurology community worldwide.

中文简介 : （来自Google、百度翻译）作为世界领先的临床神经病学杂志，神经病学是针对医生关心的疾病和条件的神经系统。该杂志的目的是通过介绍新的基础和临床研究，强调将影响神经病学实践方式的知识，推动该领域的发展。该杂志在向全球神经病学社区传播最前沿的、同行评议的信息方面处于领先地位。

CIRCULATION RESEARCH 期刊中科院评价数据

新中科院分区

大类(学科)	小类(学科)	学科排名
医学	CLINICAL NEUROLOGY (临床神经病学)	13/197

新发布的期刊年发文量

年度总发文量	年度论文发表量	年度综述发表量
529	505	24

总被引频次 :89258

特征因子 : 0.115200

影响因子趋势图

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